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The Ontario Neurodegenerative Disease Research Initiative (ONDRI) is looking for volunteers who reside in Ontario to take part in a study.
I participated in this study. 10 days may sound like a long time but for me it went quick. There was very little discomfort wearing the sensors the occasional tug on a chest hair was about it. Everyone involved were so helpful, patient and made the process so easy. The report was to me amazing so much information from these little sensors. I did it as a stroke patient but if my information can help someone with the other brain diseases and vis versa it was worth a couple chest hair tugs. The study is called, Health in Aging, Neurodegenerative Diseases and Dementias in Ontario (HANDDS-ONT) “The study is focused on finding new ways to diagnose and improve the lives of people living with neurodegenerative diseases and/or stroke. Participants also receive some insight into their own health and activities.” The data recovered is stored securely. The study take 8 weeks with 5 virtual study visits with their research co-ordinator. The only time you will have to leave the comfort of your home is to visit a Life Labs location close to you. You will receive a package containing the 3 sensors paperwork for the blood tests, a log sheet, information about the study and consent forms. All virtual visits are arranged at your convenience. After you receive your package a virtual meeting with your research co-ordinator will be arranged to assist you with putting on the sensors, 1 on the wrist, 1 on the ankle and 1 on your chest. They will be worn for 7-10 days to gather information about daily behaviors such as sleep, walking and physical activity. Sensors can be removed for showering, bathing and swimming. “During the study participants complete surveys on sleep, mood, and quality of life.” When it comes time to remove the sensors another virtual visit will be arranged to guide you and pack up the return box with the sensors, surveys and paperwork. “Later you will receive a personalized health and activity report from the period in which the sensors are worn summarizing different aspects of daily living such as walking, sleeping and physical activity.” Participants will meet with a member of the study team to discuss their report that contains data from the sensors. “The HANDDS-ONT study is recruiting a wide variety of Ontario adults including individuals living with Alzheimer’s disease, mild cognitive impairment, Amyotrophic Lateral Sclerosis or ALS, Parkinson’s Disease, Frontotemporal Dementia, and or those who are post stroke.” “Also looking for adults living in the community without a diagnoses of a neurogenerative disease/stroke.” For more information on how you can get involved: Call: 437-882- 8335 Email: handds@ondri.ca Visit: www.ondri.ca/handds
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